A Great Way to Honor Caregivers

A Great Way to Honor Caregivers

Ok, I know this is not specifically for Caregivers but with Februrary being my birthday month I could not resist sharing this with my audience. Anyone who is in Chester and Delaware Counties and parts of Montgomery County in PA, New Castle County, Delaware, South Jersey ( Gloucester, Camden and Burlington Counties) and the greater Indianapolis area and does not already get a birthday Pak it is a GREAT way to save with local businesses during your birthday month. You…

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Brene Brown’s Parents Manifesto

Brene Brown’s Parents Manifesto

I have been doing a lot of soul searching recently. I am trying to make some personal decisions about the rest of my life. In doing that Chris, my husband, told me I needed to watch Brene Brown’s show on Netflix. I did and I was hooked. Today I heard her parents manifesto on her podcast with Oprah and I knew I had to share it here. Now, I am sure most of you are light years ahead of me…

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Our IEP State Complaint Journey

Our IEP State Complaint Journey

Any of you that have been reading my blog  know I have written a book on how to prepare for your child’s IEP.  I met with the teachers, was very assertive, very engaged and I’ve done everything that I tell everyone to do. But, despite all of it all of it, they still did not follow my children’s IEP . I reached out to Parents Information Center of Delaware (PIC) who advised me to put in a complaint. I didn’t want…

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When School’s Aren’t Following the IEP

When School’s Aren’t Following the IEP

Last summer a friend told me reach out to PIC of Delaware because of what was happening with my children’s IEPs. I remember laughing. I tell people to look up the groups like PIC in the state to get an advocate but why do I need that? I mean, I am a huge advocate. I fight all the time for my children’s rights. But what this friend said to me rang true. What she said is you have a great…

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Stigma of Mental Health Disease

Stigma of Mental Health Disease

When a family has a child diagnosed with a chronic illness, they share it with family and friends. They ask for prayers. They post statuses on social media of the illness. They go through times of health and times of sickness, there are good days and bad days. There are apps that people use to start a meal train, provide updates to many, help give the parents a break and share with others. People take the child’s siblings out to…

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When Enough is Enough

When Enough is Enough

I have not written a lot in a long time. Our family has been having challenges and I have not felt that I have had any good things to help others with because if I can’t help us how can I help you? Well, as typical for me, I am wrong. Sharing is just as important as educating and this will be a little of both. Trust the experts but also trust your gut. Our son was approved for intense…

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How to Survive Public Restrooms with Sensory Kids

How to Survive Public Restrooms with Sensory Kids

If you have a child with sensory issues a public bathroom is like a nightmare in real life. The volume of people in a room where you are trying to do something very private alone makes this a big struggle. Then, you have loud hand drying blowers and automatic flushing toilets. Our sensory kids want to run to the hills. Here are some ideas that my help: Avoid them when possible – make sure you have the kids use the…

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Executive Functioning -what is it?

Executive Functioning -what is it?

The term “executive function” is starting to be a buzz word that I keep hearing. Officially the term Executive Functioning means ” The executive functions are a set of processes that all have to do with managing oneself and one’s resources in order to achieve a goal. It is an umbrella term for the neurologically-based skills involving mental control and self-regulation. “ I first started hearing about this when both of my kids got to middle school. They both have…

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When your Team is not helping

When your Team is not helping

I find it so frustrating when you take the time to build a team of doctors specialists etc and then you have to spend all of your time chasing them. I love the saying “it takes an army” but these days our army is exhausting me. I have spent years researching things that are good/helpful for our children. Each of them have different needs and I find that over the years some work and some don’t. It really is a…

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